Dealing with melanoma is challenging, don’t do it alone – “I discovered Melanoma Patients Australia and the MPA support group which was a lifesaver. We discussed options, cried, and I didn’t feel so alone.”
Support
MPA is an independent, not for profit organisation dedicated to supporting and representing those affected by melanoma. We provide many services to assist people on their journey with melanoma including: emotional support and information, education, peer to peer connections and support groups both online, on the phone and face to face. Our vision is creating a world where no one affected by melanoma walks alone.
Melanoma Patients Australia is here to help you. We are committed to providing patient-focused services for all Australians affected by melanoma. We provide information, guidance, support and assistance for family, friends and carers of those affected by melanoma.
The services we provide include:
Providing evidence based information over the phone, via written materials and at our information forums.
Connections and support via our groups, social media and telephone link ups, enabling those affected by melanoma to share experiences and insights.
Including referrals to professional counselling and psychological support.
MPA is committed to working with government, clinicians and industry to improve the lives and outcomes of those affected by melanoma.
Supporting research and clinical trials that offer the best options for melanoma patients.
MPA provides an independent voice for the more than 14,320 people diagnosed with melanoma each year contributing to national panels and advisory boards.
Feeling anxious about your early melanoma diagnosis?
You are not alone. Fear of cancer recurrence (FCR) is a condition that impacts around 75% of the population at any stage of diagnosis.
The reality of FCR, together with the unpredictability of melanoma, can often lead to heighten levels of anxiety.
If you would like to talk to someone who cares and understands how you’re feeling, please call our National Support Line 1300 88 44 50.
Surviving Melanoma for 1,461 days
chicagonow.com
The date was February 14, 2015. Valentine’s Day. I was drying off after a morning shower. I noticed this new mole on my upper back. It looked exactly like the one in the above picture. I immediately...
Every single day I worry 😕
FCR doesn’t only lie in the patient but the carers too 💔
I used to feel this way but it has lessened over time. I am vigilant with applying sunscreen and covering up and have educated my family and friends. I even volunteered at MPA with the lovely Danielle in Brisbane for 6 months as MPA were so wonderful and gave me advice, support and their time. Such a great organisation ❤
They are a curse spread through your body even where you cannot see them every organ
I'm 12 years on from diagnosis and I still think about it every day :(
Australian researchers believe they've made a breakthough in the treatment of the deadly skin cancer melanoma. They're homing in on a patient's unique immune system receptors - an approach that allows more precise drug delivery with implications for all cancer treatments. Please share this exciting news. #7News
7 News Sydney on Twitter
“Australian researchers believe they've made a breakthough in the treatment of the deadly skin cancer melanoma. They're homing in on a patient's unique immune system receptors - an approach that allows more precise drug delivery with implications for all cancer treatments. #7News t.co/3Vyh...
I’ve been on Autoimmune treatment since 2016 and was told I was in the middle percentage to that may take a little longer as I also was Stage 4 but no Braf just had a brain tumour set back But I’ve been specifically Radiation zap so hopefully be 💯 soon Great treatment
Yvonne Bewes
Lance Marsh Isobel Marsh
According to the Skin & Cancer Foundation Inc (Aust), did you know UV is the main cause of melanoma and other skin cancers? February's average UV rating for Australia is in the Very High and Extreme ranges. Remember to wear SPF50+ when the UV rating is 3 or above. Download a UV app today and protect your skin for life.
Anne De Manser
Georgia Mills-Thompson
Cover up. Hat and Zinc Cream not harmful chemical laden so called sunscreens.
***Important Survey Number 1. Adjuvant Nivolumab.
The Pharmaceutical Benefits Advisory Committee (PBAC) will consider two important melanoma drugs for listing on the Pharmaceutical Benefits Scheme (PBS) at their March 2019 meeting.
The PBAC value and consider the views of people that have been affected by melanoma when making these important decisions.
MPA is writing submissions for both listings and your view is important. We would very much appreciate 5-10 minutes of your time to complete this survey, regardless of your personal experience with melanoma.
1.Nivolumab (Opdivo) for “adjuvant” treatment of patients who have had completely surgically resected Stage III or Stage IV melanoma.
This is the second time this drug is being considered by the PBAC for treatment in the adjuvant setting as it was not accepted at the July 2018 meeting.
This needs to be completed by midnight this Mon 11th Feb 2019 please.
With Thanks - Victoria Beedle CEO
PBAC consideration of Nivolumab (Opdivo) (in the adjuvant setting) - Second attempt
surveymonkey.com
Take this survey powered by surveymonkey.com. Create your own surveys for free.***Important Survey Number 2. Adjuvant Dabrafenib (Tafinlar) and Trametinib (Mekinist).
The Pharmaceutical Benefits Advisory Committee (PBAC) will consider two important melanoma drugs for listing on the Pharmaceutical Benefits Scheme (PBS) at their March 2019 meeting.
The PBAC value and consider the views of people that have been affected by melanoma when making these important decisions.
MPA is writing submissions for both listings and your view is important. We would very much appreciate 5-10 minutes of your time to complete this survgey regardless of your personal experience with melanoma.
2.Dabrafenib (Tafinlar) and Trametinib (Mekinist) for “adjuvant” treatment of resected Stage III melanoma in BRAF mutation positive patients.
This needs to be completed by midnight this Monday 11th Feb 2019 please.
With Thanks - Victoria Beedle CEO
PBAC consideration of Dabrafenib/Trametinib Combination in the adjuvant setting
surveymonkey.com
Take this survey powered by surveymonkey.com. Create your own surveys for free.
