Dealing with melanoma is challenging, don’t do it alone – “I discovered Melanoma Patients Australia and the MPA support group which was a lifesaver. We discussed options, cried, and I didn’t feel so alone.”
Support
MPA is an independent, not for profit organisation dedicated to supporting and representing those affected by melanoma. We provide many services to assist people on their journey with melanoma including: counselling, education, peer to peer connections and support groups both online, on the phone and face to face. Our vision is creating a world where no one affected by melanoma walks alone.
Melanoma Patients Australia is here to help you. We are committed to providing patient-focused services for all Australians affected by melanoma. We provide information, guidance, support and assistance for family, friends and carers of those affected by melanoma.
The services we provide include:
Free professional counselling to those affected by melanoma.
Providing expert information over the phone, via written materials and at our information forums.
Connections and support via our groups, social media and telephone link ups, enabling those affected by melanoma to share experiences and insights.
MPA provides an independent voice for the more than 12,500 people diagnosed with melanoma each year contributing to national panels and advisory boards.
MPA is committed to working with government, clinicians and industry to improve the lives and outcomes of those affected by melanoma.
Supporting research and clinical trials that offer the best options for melanoma patients.
Level 8, East Wing
Wesley Research Institute
451 Coronation Dve, Auchenflower QLD 4066
Our Spring Newsletter 2018 with an important message from CEO Victoria Beedle.
Also featured:
The lovely Belinda Smith, wife, mother and daughter, shares her insights on living with a melanoma diagnosis and hopes it provides inspiration for others.
Fear of melanoma recurrence following an early stage diagnosis can have a huge and sometimes negative impact on day to day life especially in the first couple of years. It's rational, justified and yet can be very distressing.
Our proud corporate partnership with the wonderful Smiling for Smiddy team and the Mater Foundation.
mailchi.mp/melanomapatients/melanoma-patients-australia-spring-newsletter
So true and can relate to all what Belinda is going through. It certainly isn’t easy. Keep fighting.
Optimistic news from Dr Jeffrey Weber, world leading melanoma expert, talking about anti-PD1 Keytruda (pembrolizumab) immunotherapy complete response data suggesting metastatic melanoma cures.
Immunotherapy Complete Responses Suggest Metastatic Melanoma Cures
medscape.com
Because complete response from pembrolizumab is durable, Dr Weber is predicting that a cure for melanoma may be possible.
Love this sort of news
PD1 gave my late partner more time perhaps but that was all and he was BRAF wild type. I'm glad it works for some though
For what percentage? Because it did 0% for my dad. Nothing no reduction of cancer. In fact the side effects contributed to his death.
Rebecca Ann pfffft
Which braff is it working well on
Great read, thankfully to date I have been a complete responder 😊
Interesting information for sure.
Lyn Frame Andrew Frame❤️
I’m very lucky to continue to be disease free 12mths post treatment. Amazing work and research, absolutely life changing 🙏🏻
Justin Batrouney
Yazz Min
Robyn Kopp show Dad.
Helen Elizabeth Power - you helped get this through x
I started on Keytruda in March this year & have had 3 all clear PET scans. Have to have treatment for 12mts before it is stopped. Very happy with it.
Have been on this treatment and it seems that it has worked! Last PET scan to confirm in two weeks 😁😃
Grant Stork Watch the video!
Individuals with an inherited form of melanoma responded well to immunotherapy in a small trial in Sweden.
Hereditary melanoma effectively treated with immunotherapy
upi.com
Individuals with an inherited form of melanoma responded well to immunotherapy in a small trial in Sweden.
Rosemary Jones
Ours is inherited melanoma. We would still get them even without the sun exposure. Julie Morgan. Sounds good.
How do you know if it's an inherited melanoma? My mum passed away last January from metastatic melanoma, my sister, brother and myself have skin checks but no one has told us there is an inherited melanoma.
They seem to know Casey Sanders did u read this
L
Meika Burey This is the organisation I was talking about
Khali-Anne Dunn...interesting .... For sure..
Zara McLeod Miranda Kirkland
Rebecca Ann just in case
MPA was delighted to have attended and presented at the Australasian Melanoma Conference 2018.
CEO Victoria Beedle (right), Board Directors Prof Mark Smithers, Karen van Gorp and Alison Button-Sloan were joined by Adrianna Henderson Zadro, Melbourne Support Group Co-Facilitator (left) and many of our brilliant MPA members and supporters including Di Mason, CEO Melanoma TAS.
It was an inspirational 2 days and has renewed our focus to ensure no melanoma patient or their family walks alone.
We are always here to help - call us on 1300 88 44 50 or email info@melanomapatients.org.au
Breaking News: MPA, along with the global melanoma cancer community, warmly congratulates Dr James Allison on sharing the 2018 Nobel Prize in Physiology or Medicine today.
Dr Allison’s work led to a greater understanding of CTLA-4, a key checkpoint in the immune system that help regulate the body’s response to disease and infection. That research led to the development of multiple immunotherapies called checkpoint inhibitors, which act as a brake on the immune system.
The first such drug ipilimumab, has been shown to dramatically extend the lives of many patients with deadly advanced melanoma.
parkerici.org
Allison shares medicine’s top prize for uncovering keys to regulating immune system, leading to major advancements in cancer treatment James P. Allison, Ph.D., a director at the Parker Institute for...
Thanks for sharing MPA it is great knowing the history if your life saving drugs!
Hopefully working for me
How awesome....xxxxx
It’s excellent to see cancer research being recognised in such an elite field , can only be good news 👍
This is fantastic and James Allsion deserves it together with Tasuku Honjo
This is the best news ever . One day soon there will be a cure for melanoma as I lost my husband to this. He had stage 4.
What a legend!
Fantastic, and thank goodness!!
Thankyou great man. This was my lifesaving 5 years ago. XX
Absolute legend no words will ever be enough 💯😘
Fantastic news. Well deserved Rose.
He would be a saint to many & deservedly so. Thank you.
