Dealing with melanoma is challenging, don’t do it alone – “I discovered Melanoma Patients Australia and the MPA support group which was a lifesaver. We discussed options, cried, and I didn’t feel so alone.”
Support
MPA is an independent, not for profit organisation dedicated to supporting and representing those affected by melanoma. We provide many services to assist people on their journey with melanoma including: counselling, education, peer to peer connections and support groups both online, on the phone and face to face. Our vision is to reduce the impact of melanoma on all Australians.
Melanoma Patients Australia is here to help you. We are committed to providing patient-focused services for all Australians affected by melanoma. We provide information, guidance, support and assistance for family, friends and carers of those affected by melanoma.
The services we provide include:
Free professional counselling to those affected by melanoma.
Providing expert information over the phone, via written materials and at our information forums.
Connections and support via our groups, social media and telephone link ups, enabling those affected by melanoma to share experiences and insights.
MPA provides an independent voice for the more than 12,500 people diagnosed with melanoma each year contributing to national panels and advisory boards.
MPA is committed to working with government, clinicians and industry to improve the lives and outcomes of those affected by melanoma.
Supporting research and clinical trials that offer the best options for melanoma patients.
Level 8, East Wing
Wesley Research Institute
451 Coronation Dve, Auchenflower QLD 4066
Treating Moles and Melanoma During Pregnancy.
"The lack of any hard and fast guidelines for best clinical practices means that the management of moles and melanoma during pregnancy is a challenge" says Dr Marie Aleth Richard.
Read on...
Treating moles and melanoma during pregnancy
dermatologytimes.com
A pregnancy-associated melanoma (PAM) prognosis does not appear to be worse than melanoma in non-pregnant controls, researchers reported at EADV. Nonetheless, measures should be taken to protect the f...Potentially lethal melanomas may be being missed by doctors because the formula they are taught to recognise skin cancers often fails to identify thick melanomas.
odt.co.nz
Potentially lethal melanomas may be being missed by doctors, a University of Otago researcher says.
Tell me about it 18mths after seeing a GP and he said ALL GOOD I found my Melonoma bleeding so found myself on the merrigoround of metatassis lung cancer so now on Keytruda treatment
Lesley Ann McMahon
When the gp looked at my hubbys melanoma she thought it looked ok but took a biopsy anyway because I thought it wasn’t right. Hmm stage one Clarke level three then within 9 months he was stage four with liver and lung Mets. 1/3 liver removed then yervoy immunotherapy fir lung Mets and he is now three years down the track. Lucky fir him his dr decide she would biopsy it or he may not be here right now not to mention my persistence in follow up that is not the norm ie scans
Tom Middelburg
"When in doubt cut it out", my gp's words.
Troy Besson hmmm..!
My advice would be to get a referral from your GP to a dermatologist, there are skin cancer specialists ones, and much better diagnostic equipment., and then they can monitor any suspicious areas..Better to have Specialist opinion—-
Yep, doctors missed mine 😞
Lotte Verhoef
Our friends at AIM run Living With Melanoma Symposiums.
These bring together leading medical and wellness professionals with people affected by melanoma to learn, connect and share. They hold presentations for those who are recently diagnosed, are in treatment, or have completed treatment.
This upcoming symposium will include a presentation on Melanoma and Fertility:What Do We Know?
You can join via live streaming from the comfort of your home.
Sunday 30th Sep
Australian time: 1am to 5am
AGENDA AND REGISTRATION:
Free Melanoma Symposium | UCSF, San Francisco, CA
aimatmelanoma.org
Date: Saturday – September 29, 2018Time: 8:00 am – 12:00 pm (PST)Location: Genentech Hall Auditorium Byers Auditorium Mission Bay 600 16th St San Francisco, CA 94158Survivorship care after a melanoma diagnosis is important.
Completing treatment can be stressful. You may be relieved to finish treatment, but find it hard not to worry about it coming back.
If you are experiencing difficulties, would like support or need more information, MPA is always here to help.
We are only a phone call away 1300 88 44 50.
Living as a Melanoma Skin Cancer Survivor
cancer.org
American Cancer Society: Completing treatment is stressful and exciting. Though you may feel relieved, it's hard not to worry about melanoma skin cancer recurrence. Learn more here.Three independent research teams recently reported developing ways to predict which melanoma patients are most likely to respond to checkpoint immunotherapy.
Crystal Ball of Immunotherapy Response is Becoming Clearer
technologynetworks.com
Predicting the response to checkpoint therapy in melanoma cases will help optimize treatment for individuals.
I’ve just come off a one year trial. I hope like hell it’s worked!
My mum spent a torturous few months on immuno. It made her so incredibly unwell akin to chemo, actually worse. And for nothing which is worse. She has ceased treatment now.
Carrie Lilly
