It was an energising and inspiring two days at the Australian Patient Advocacy Alliance (APAA) Summit 2026. Melanoma Patients Australia was proudly represented by CEO Shannon Anderson and National Manager, Communications & Engagement, Natalie Rupil, to strengthen patient-centred care.
The Summit brought together sector leaders, advocates, and consumers from across the country – creating a powerful space to explore how, together, we can continue to advocate for patients together, in an increasingly complex health landscape.
One of the most significant moments of the Summit was the announcement of a refreshed National Strategic Framework for Chronic Conditions (2026–2035) by The Hon Mark Butler MP.
This Framework sets a strategic direction for a more proactive and integrated approach to chronic disease, with five key priorities:
In support of this vision, Mr Butler also announced a $110 million investment over three years to launch the Chronic Conditions Prevention and Integrated Care Grants Program. This program will fund initiatives that strengthen prevention, improve coordinated care, and support people managing multiple chronic conditions—an important step forward for Australians navigating complex health journeys.
Another major focus of the Summit was Australia’s ongoing Health Technology Assessment (HTA) reform. Discussions centred on the need for a faster, more efficient, and more equitable system that brings innovative medicines and health technologies to patients sooner.
The vision is clear: a timely, modern HTA process that better reflects real‑world needs and aligns with patient experience. This reform has the potential to significantly improve access to emerging therapies – something particularly meaningful for the melanoma community.
Melanoma Patients Australia was especially proud to see Karen Van Gorp – our Consumer Representative, Deputy Board Chair, and contributor through Cancer Voices – share insights and advocacy on the Patient Accommodation and Travel Scheme (PATS).
Karen spoke powerfully about the real‑world challenges patients face when accessing equitable care, particularly for those in regional and remote areas. Her insights underscored the urgent need for policies that reflect the reality of patient journeys.
A heartfelt thank‑you goes to Deidre Mackechnie, CEO of APAA, and Leanne Raven, APAA Board Chair, for curating an exceptional program. Their leadership created an environment where honest conversation, shared expertise, and future‑focused thinking could thrive.
Across every keynote, panel, and discussion, one theme stood out:
Collaboration.
To meet the evolving challenges of our health system – especially as AI and digital technologies reshape care – we must work together. The sector’s collective passion must translate into collective reform that delivers care that is timely, affordable, navigable, and safe for all Australians.
Melanoma Patients Australia remains deeply committed to championing the voice of melanoma patients and contributing to ongoing national discussions. We look forward to continuing our work with APAA and sector partners to ensure that what matters most to patients is reflected in the policies, systems, and care models of the future.
Together, we can build a health system that truly puts patients first – today and in the years ahead.
Like this blog? Head to Melanoma Patients Australia News & Events to read more.
If you or a loved one is affected by Melanoma and needs support, the team is here for you, because no one affected by melanoma walks alone. Contact us here.
📞 Call the National Melanoma Support Line 1800 445
💻 Book a Melanoma Nurse Telehealth appointment
🧡 Speak with our Melanoma Nurse Counsellor
🤝 Join a Melanoma Patients Australia Support Group
Melanoma Patients Australia recognises Aboriginal and Torres Strait Islander Peoples as the Traditional Owners and Custodians of Australia, and we acknowledge, respect and embrace their continued connection to land, waters and community. We pay our respect to all Aboriginal and Torres Strait Islander Elders past, present and emerging.
We recognise, value and celebrate diversity and act in the spirit of inclusion.
