Useful Apps During early diagnosis patients are confronted with vast quantities of information that can lead to great stress, and they may also be under pressure to communicate details of the condition and treatment to many family and friends.
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Useful Apps ClinTrial Refer Melanoma supplies a current list of active and pending melanoma clinical research trials across Australia updated monthly.
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Useful Apps Meditation made simple. Guided meditations suitable for all levels from Headspace. Meditation can help improve your focus, exercise mindful awareness, relieve anxiety and reduce stress.
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Useful Apps This tool allows you to find the UV rating in any Australian location as well as useful tips regarding sunscreen application and Vitamin D levels according to your entered physical profile.
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Mater Foundation
620 Stanley Street
Woolloongabba
Brisbane, 4102
Although Ocular Melanoma (eye) is uncommon, it can happen to anyone. Doctors and researchers are stepping up their efforts to promote awareness and have established a worldwide registry to discover treatments that will hopefully prove life saving for many.
For those interested, the Australasian Ocular Melanoma Alliance (AOMA) held its inaugural Summit this year; you can view the videotaped patient information sessions here:
www.youtube.com/playlist?list=PL4pMaZCLvjzGvMPYXwRIm9zUgImITRQ-o
St Vincent's Hospital, Sydney
What a wonderful melanoma iniative from our Kinghorn Cancer Centre, as featured on 9 News Sydney last night.
MPA and Peter Mac are again co-hosting their annual Melbourne Melanoma Patient Information Forum.
Wed 25th Sep
6:30pm to 9pm
Tickets Available Now.
Please join us for a light supper (6pm onwards) and hear the latest information on melanoma treatments, surgery and strategies for looking after yourself from experts including Prof Michael Henderson, Prof Grant McArthur and others. We will also have a patient speaker.
There will be plenty of time for Q&A with the speakers afterwards.
Registration is essential.
Please share with family & friends.
Melanoma Information Forum - Melbourne - Melanoma Patients
melanomapatients.org.au
Join us for supper on Wed 25 Sep to hear about the latest melanoma information.Melanoma patients across Australia will benefit from the release of updated clinical care guidelines that recommend sentinel node biopsy and drug therapy as important tools in the management of melanoma.
According to Prof John Thompson, Chair of the Guidelines Working Party, the message to Australians is simple: ‘keep a close eye on your skin and if anything looks suspicious or changes, get it checked by a medical professional who now has access to up-to-date, evidence-based treatment guidelines’.
The Melanoma Guidelines are available to both patients and doctors and are important to share:
wiki.cancer.org.au/australia/Guidelines:Melanoma
Evidence drives sweeping changes to melanoma treatment recommendations - Cancer Council Australia
cancer.org.au
Updated national clinical guidelines recommend not performing major lymph node surgery routinely for low-volume melanoma in lymph nodes, and active drug therapies as standard for advanced melanomaTickets for our Gala Dinner are now on sale.
MPA Gala Dinner 2019 Tickets, Fri 25th Oct 6:30 pm - 11:30 pm | Humanitix
events.humanitix.com.au
Welcome to the Annual Melanoma Patients Australia Gala Dinner! Join us for A Night Amongst the Stars with dinner and dancing! The Gala Dinner is an opportunity for the melanoma community to celebrate ...For about 50% of people with advanced melanoma, there is only one treatment choice: immunotherapy. But for those whose late-stage melanoma expresses a BRAF gene mutation, there’s another option – combinations of targeted drugs.
Targeted Drug Combination Can Have Long-Lasting Results for Some With BRAF-Mutated Melanoma
curetoday.com
Figuring out whether to take targeted drugs or immunotherapy can be challenging for patients with metastatic melanoma that expresses a BRAF gene mutation, but there are rules of thumb that can help.
My mum was BRAF +, targeted therapy worked for 9 months, then we lost her.
I wish this had been available for mum! Alas too late!
Michelle Miller
Chris. Michael. Rachael. I have BRAF and starting the targeted therapy
I’m going to sound dumb but I don’t get it.
Maka Darren McAullay - you not BRAF hey?
